Teena

Their first indication of Gabriel's health problems came when Teena had a scan when she was five months pregnant.

"The first time this happened was horrifying," Teena said.

"I've never heard his voice because you need air to pass through the voice box but the hole in his neck for the ventilator is below that," Teena said.

In the meantime, Teena has returned to work as a scientist while Sebastian has continued his career as an engineer.

"This was 17 months ago. We've been here ever since," Teena said.