IVF

This is one of the facts that played into the complicated decision Lucy and Ollie made to opt for pre-implantation genetic testing, a special type of IVF where embryos are created outside of the body and screened for the genetic condition.

Blind content creator and TikTok star Lucy Edwards says she's "so excited" to be on a health kick to undergo IVF for gene editing purposes, but reveals the dilemma she faced in deciding to screen out the very gene that made her blind.

IVF will edit out the very thing that has made Lucy who she is today - a journalist, advocate, author and broadcaster.

"If I had a baby and, unknowingly, I had a gorgeous, gorgeous baby with disabilities, I would be so thankful, so happy and amazed but knowingly having this gene? That's why we're having IVF."

Lucy, who is known for her How Does A Blind Girl... series of videos, is overjoyed by the prospect of IVF but she has also been frank about the fact she currently does not qualify, owing to her current weight, a sensitive element of IVF treatment that many keep to themselves.